Milostones: Milo's Milostones

2006

Nov 29 -- Born at 12:12pm
Nov 29 -- First time intubated
Nov 30 -- First Helicopter Ride
Dec 6 -- First Surgery (5 hours long)
Dec 25--First time breathing by himself

2007

Jan 3--First time out of ICU
Jan 12--First Swallow Study
Jan 17--First Ambulance Ride
Feb 9--G-tube & Nissen Surgery
Feb 18--Intestines popped out incision
March 6--First Day At Home
March 12--First Doctor Appointment
March 14--First Trip To ER
March 21--First Laugh
April 1--Second Helicopter Ride
April 4--First Code Blue
April 9--Second Code Blue
April 10--Third Code Blue
April 11--Tracheostomy Surgery
April 12--Fourth & Fifth Code Blue
April 13--Adoption Day
April 20--MRSA Confirmed
May 1--Learned to Suck Thumb
May 7--Sixth Code Blue
May 11--Seventh Code Blue
May 16--Transfered to Home Vent
June 13--Transfered to Memorial Hospital
June 4--Reached Out For Mom To Pick Him Up
June 16--Back to Children's Hospital
June 25--Broviac Catheter Placed
Aug 7--Sat Unassisted for 10 Seconds
Aug 16--First Bite Of Food--Applesauce
Sept 4--Moved to 4th Floor
Sept 21--First Tooth
Sept 25--First Newspaper Interview
Sept 29--Ambulance Ride To New Children's Hospital
Nov 9--Started CPAP Trials on Vent
Nov 20--Started Bearing Weight on Legs
Nov 29--First Birthday & Trip to Aquarium
Dec 1--First Birthday Party
Dec 18--First Haircut

2008

Jan 15--First Time Milo Pulled His Trach Out
Jan 17--First Professional Photo Shoot
Jan 30--Multiple Food Allergies Diagnosed
April 1--Finally Home Again

What Are Milostones?

Before Milo came along I assumed I would record all of the normal childhood milestones for my child. Milo came crashing into this world with his brave and determined soul changing lives of all around him. I learned that when you have a special needs child the typical childhood milestones (if and when they are achieved) are not what matters most. Milostones are the milestones of Milo's life. They chronical his first Flight For Life helicopter ride, the first time he came off the ventilator, and finally sitting up at 12 months old just to name a few.

Milo

At 7 years old Milo is a wavy haired, loving, smart & onrey little guy! Despite his rough start in life (see Milo's Medical page) he is doing wonderfully. He loves Mickey Mouse and mascots of all types. Milo enjoys going to the zoo and playing outside especially if it involves water. Milo is in 1st grade and doing very well with his reading but struggles with math. He still loves trains. He had his g-tube removed last year and is doing well growing and gaining a little bit of weight. He loves yogurt, Cheetos, French fries, rice, gluten free mac & cheese, and chicken nuggets. Above all Milo is a special little guy who's smile lights up the lives of those around him.

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Milo's Milostones