Making Christmas Cookies

Milo helped make Christmas cookies for Santa today.

He wasn't too sure about the feel of the cookie cutter on his hand at first. He kept pulling his hand back but finally got the hang of it...

Sprinkles are lots of fun!!

Waiting is so hard to do...


Finally the finished product!

He didn't try to eat the cookie, probably a good thing because he's allergic to wheat and eggs. If I thought he'd really try to eat it I would have made him some that are allergy free :0) Did you see the pink thing on his trach? That's a cap that totally closes off his trach and makes him breathe the traditional way (though his mouth & nose). We had an incident earlier this week where I gave him a glass of milk (sippy cups are no good anymore) with just a very tiny bit of milk in it, he tried to drink it and the milk poured off his chin straight into his unprotected trach. Needless to say much suctioning occured and I learned to cover the thing with something so I tried the cap and he didn't mind one bit. YEAH that mean we're getting closer....

We're leaving Tuesday morning to go to Grandma & Grandpa's house for Christmas. Yesterday Milo started rolling his suitcase up and down the hall. I think he is ready to go, what do you think?

Hope everyone has a Terrific Christmas!!!

Two Years Ago Today

Here is a video I recently came across on my computer of Milo when he was only a few weeks old. He was finally awake some during the day after his big surgery but he was still getting sedation medication, the weaning process is very slow after being on them for so long.

Watching this video now I realize just how small and frail he was. At the time I thought he looked good and really he did for what he went through. I never could have imagined how the next 2 years would play out or that he would be playing in the snow just like any typical 2 year old. Enjoy this video of him in the snow last week.

I know it's been way too long since I posted last, so much has happened. It's hard to keep up with Milo these days, he's a typical toddler with the terrible 2's who just happens to have an alternate method of breathing :0) I promise that I will get pictures of his birthday parties up soon!