Summer's Here!

Wow, it's been hot here the last few days! Milo has been enjoying playing outside in the water. He loves to play in his water table pouring water from one cup to another, he can entertain himself for hours if ya let him. Of course he gets soaking wet in the process so when his lips turn blue we know it's time for a break to warm up :0) Milo also doesn't mind walking through the sprinkler. The other day we were in the front yard watering flowers and Milo started to run off so I sprayed the hose across the sidewalk assuming he would stop rather than get wet but he kept on running and giggling. The next day I turned on a sprinkler in the back yard and he would walk right though it. His water table was right on the edge of the water and stood there playing even with the water sprinkling in his face.

Milo has been tolerating the cap on his trach much better these days. He is allowed to have it on "all waking hours" and for the most part he leaves it on all day. He knows he isn't supposed to take it off so he will spin it around every now and then. Today he took it off and put it back on a couple of times. He is ornery though and will take it off and throw it just as hard as he can for no apparent reason at all, we have lost quite a few caps this way. He also grabs it off when he is upset and crying. I don't think he "needs" it off when crying it just a habit at this point. Sometimes when we can't find the cap we will ask him where it is and he will go get it, especially if he gets to go outside when it's back on. I've also caught him pulling it off and playing with it, putting in a dump truck or tractor. I guess it's a toy that's always with him...

We still don't have a date for decannulation (trach removal) yet. I have a call into the doctors to remind them so hopefully we will hear something very soon!