As I sit here I am trying to think about December 31st, 2010 and what wonderful things will unfold over the next year.
I have a few hopes for this year. I hope that Milo will find his voice just a little more. It can be verbal or with a communication device, as long as he can tell me what is going on in that little head of his. We've been struggling with tantrums lately that I can best attribute to not being able to communicate and be understood. He's doing a great job with sign language but he can not communicate with the general world around him. I am very grateful for the amount of communication that he does have though :0) I really really hope we can get his eczema under control, by far it has been the most irritating aspect of his medical stuff. I hope that he will learn to eat even just a little. Really it would be nice but I'm not pressuring this at all. He is more interested in eating or at least playing with food which is a step in the right direction. He requests to be in his highchair to eat cheese or whipped cream, it's definitely progress. I hope he blows the socks off of the preschool staff! He starts school on Wednesday, I can hardly believe it. At his evaluation he didn't feel like preforming the tasks he was asked to so I think it was not a great snapshot of his abilities. I hope he gets the hang of school and follows their routine instead of insisting on doing his own thing.
I know there are a few medical things brewing for Milo this year. In the spring he will have to have another heart cath so they can get another good look at his pulmonary arteries and how the narrow parts are affecting his heart. There can be several outcomes 1. Everything is great no further intervention needed right now 2. They can try to balloon out the narrow areas which they tried last year and Milo didn't tolerate well on his right side. 3. They can put in stents to help hold open the arteries but he is kind of young for this and they would have to be expanded and possibly replaced as he grows and again he may not tolerate this either 4. This is the biggest and riskiest--another open heart surgery to cut out the narrow areas, really it isn't a surgery on his heart but that's the best way to describe it because it will require the incision down his chest, being put on a heart-lung bypass machine and his sternum being wired back shut again. I really hope this doesn't need to be done! The other medical issue that is being looked at is his genetics, to see if he has any genetic syndromes that might explain all his abnormalities. So far they haven't found anything but he has a few more blood tests and x-rays that I haven't heard back about. The genetics doctor is concerned about him being short, me not so much. If they find something it won't change Milo at all it just might explain a few things and give us some things to look for as far as growth and development. I've been kind of defensive about his genes which is kind of strange seeing how none of them are mine. I think it's because I don't want to hear that something else is "wrong" with him, he is perfect just the way he is.
Whatever 2010 bring us we will take it head on and thrive just as we have for the last 3+ years!
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