Sunday, March 23, 2008

HAPPY EASTER & Meeting Nurses Tomorrow

We hope everyone is having a wonderful Easter! Milo found the basket that the Easter Bunny left for him. In the basket he found a book, bubbles, a stuffed monkey, duck & bunny and the eggs he colored yesterday. Milo tossed his eggs around to the point they ended up in the trash. He is allergic to eggs so I figured once they were cracked up he was done with them.

Tomorrow we get to meet the nurse the agency is assigning to us. I sure hope it goes well because if all goes as planned Milo gets to leave the hospital exactly 1 year from when he got here, April 1st -- no joke :0) There is lots to do before he comes home. His room in finally done, hardwood floor installed, painted, furniture in & pictures hung. Now we have to figure out how to organize all his extra stuff. It is amazing how much stuff comes along with Milo!! Now the rest of the house needs a good cleaning, grocery shopping needs to be done, his carseat needs to be put in the 4runner, all kinds of fun things. The biggest task will be moving all his stuff out of his hospital room, we moved right in so everything he owns is at the hospital. Right now we will have a nurse for 12 hours a day (during the day not at night) for 5 days a week. I am still looking for night nurses, I think I have found someone who can do 1 night a week. Definitely a start!
Well better go for now, Milo needs untangled yet again ;o)

Monday, March 17, 2008

Rumor Has It....

Rumor has it that Milo may be able to come home in the next few weeks. I understand that the home nursing agency has found day nurses for 5 days a week. If this works out that is enough help to get him into his own bed in his own room in his house very soon. Cross your fingers and says prayers. I should have a better idea of if and when this glorious event will happen by tomorrow afternoon. We have a care conference with all his doctors, therapists & nurses at 11:30 Tuesday.