WOOO HOOO!!!

Milo had an appointment with his pulmonologist today. We almost didn't make it though, I lost the car key and tore the house apart looking for them. I finally found it and out the door we went, I think it's the fastest we've loaded the car yet. We got there right at his appointment time but still had to wait for a long time to see the doctor. She came in and was amazed with Milo who was not on his vent and doing great. She asked what our routine was for being on the vent. I paused not sure how to answer her question and then asked her if she wanted to know what she told us we could do or what we were really doing. She smiled and said she wanted to know what he was really doing, she knew we weren't following the "rules" to the letter. I told her that he really was off the vent most of the time he was awake. We (loose translation meaning his nurses) try to keep him on the vent in the morning but by afternoon everyone is tired of chasing him down because now he runs away when you come at him with the vent. The doctor said she is fine with that schedule because he was obviously doing well. She asked we try to keep him on the vent in the morning but knows he won't put up with that for long so we now have official permission for MILO TO BE OFF OF THE VENTILATOR WHILE HE IS AWAKE!! I think his nurse was more relieved than me :0) He still needs to be on the vent while asleep to help with his growth. He still works harder to breathe than the average person so he uses more calories, if he gets a little help while sleeping it should continue to help with weight gain.

Before I go here's a video of the little guy in action. He can now climb the ladder to the slide. This time he was successful, the next time he fell off. Only a few little scrapes and hurt feelings other wise no harm done.